First, though, I sent the synopsis of the web site to my city’s major newspapers. The Advocates for Children non-profit said they will contact me shortly. But … the state responded. I got an email from the NCLB Accountability and Targeted Assistance person at the Dept. of Education. Basically some of his response is a cut and paste from the laws and things I site on this web site! First, here is his email to me:
Thank you for your e-mail requesting clarification of the consequences for refusing to allow your severely disabled daughter from participating in the NCLB program. In reading the information on your Web site it is understandable that you have come to the conclusion that no benefit may be gained from allowing your daughter to participate in testing. However, there are important reasons why state law requires student participation in academic assessments, even for those students with severe disabilities.
First, it is important to measure the academic performance of students with the most significant disabilities. Before 1998, learning was not measured or reported for such students. By taking alternate assessments, students become more visible in their school and have a greater chance of being considered when decisions are made to allocate staff and resources. Even the most severely disabled students deserve equitable access to a high quality education while in school. The evidence submitted in portfolios helps ensure that students with the most intensive disabilities have an opportunity to show what they know and to receive instruction at a level that is challenging and attainable.
Second, it is important include students with significant disabilities in standards-based instruction is to explore their capabilities, whatever those capabilities may be. Performance expectations for severely disabled students have traditionally been quite low, and data on their performance have only recently been collected. Although life skills are critical for such students to function as independently as possible, academic skills are also important. Learning standards are defined as “valued outcomes for ALL students.”
Some students with disabilities have never been taught academic skills and concepts, even at very basic levels. Yet all students are capable of learning at a level that engages and challenges them. Teachers who have incorporated learning standards into their instruction cite unanticipated gains in students’ performance and understanding.
An additional advantage to using this approach is that some social, communication, motor, self-help, and other daily living skills can be addressed during activities in which learning standards are taught.
It is not legal for a parent to refuse to have their child participate in NCLB testing. However unlikely in your circumstances, the school and the district may enforce truancy laws and/or disciplinary action for unauthorized absences.
Finally, the NCLB program is used to hold schools and districts accountable, on a yearly basis, for the progress they have made toward the objective of the No Child Left Behind Law that all students be proficient in Reading and Mathematics by 2014. Students not participating in NCLB tests are counted against the school’s and the district’s participation rate.
We encourage you to contact us if you have further questions regarding the implications for non-participation in NCLB testing. Not everyone agrees with NCLB. But the primary goal underlying this law is nevertheless important - for parents, educators, and other stakeholders to help all children learn to the best of their ability. Regards,
There is nothing new there and actually some errors. That being said, here is my response:
Thank you for your response.
First, it is important to measure the academic performance of students with the most significant disabilities. … The evidence submitted in portfolios helps ensure that students with the most intensive disabilities have an opportunity to show what they know and to receive instruction at a level that is challenging and attainable.
I agree, but in my daughter’s case, she cannot communicate AT ALL. There is no way she will have the “opportunity to show what [she] knows.” This is well documented by the school and the medical community, she cannot “show” anything.
Although life skills are critical for such students to function as independently as possible, academic skills are also important. Learning standards are defined as “valued outcomes for ALL students.”
Academic skills are important, but not for this population. The NCLB is based on a law demanding, in your words, “all students be proficient in Reading and Mathematics by 2014.” This is completely outside the realm of logic to consider math and reading when it comes to my daughter.
Some students with disabilities have never been taught academic skills and concepts, even at very basic levels. Yet all students are capable of learning at a level that engages and challenges them.
This is patently untrue. The first sentence is correct, but not all students are capable of learning the subjects in question here at any level. And if they are, some cannot be tested. There is absolutely no way known to the academic or medical communities of Massachusetts to show what level my daughter is capable of learning at nor to know what level she has achieved.
Teachers who have incorporated learning standards into their instruction cite unanticipated gains in students’ performance and understanding.
Can you show any studies on THIS population to back that up?
An additional advantage to using this approach is that some social, communication, motor, self-help, and other daily living skills can be addressed during activities in which learning standards are taught.
So why waste time on the “learning standards” that will have no effect on her life whatsoever, nor can they be shown to work, and why not spend all the time on social, communication, motor, self-help and other daily living skills which will improve her quality of life? There is a waste of time and money trying to teach the unteachable when the skills that might be advantageous are a sideline.
It is not legal for a parent to refuse to have their child participate in NCLB testing. However unlikely in your circumstances, the school and the district may enforce truancy laws and/or disciplinary action for unauthorized absences.
They cannot withhold the diploma that she has been told she will never receive. If I am arrested who will compound her medicines in the morning, as I do daily, and administer the 16 that I do now? What are the truancy laws or disciplinary actions? Does the state arrest severely disabled 15 year old girls in wheelchairs or their sole care taker? I need a reason to allow her to be subjected to the exam, not threats saying I must allow it.
Finally, the NCLB program is used to hold schools and districts accountable, on a yearly basis, for the progress they have made toward the objective of the No Child Left Behind Law that all students be proficient in Reading and Mathematics by 2014.
How do you hold someone accountable when they cannot report? Was Terri Schiavo held accountable for anything after her cardiac arrest? How can the NCLB program hold someone accountable but they have no way AT ALL to account?
We encourage you to contact us if you have further questions regarding the implications for non-participation in NCLB testing.
I do have a further question. Why is my daughter potentially made to suffer when the NCLB program will get no information? There are several reasons the testing is to my daughter’s detriment. As all of us, my daughter may very well experience test anxiety. She may very well know that her future depends on the NCLB, as with all her peers. She may very well also know that she will completely fail the exam. How would one deal with knowing you had to take an exam that determines your future (SAT, LSAT, biopsy, …) and that you will absolutely fail since you cannot control the answer? During the testing, my daughter will be asked questions or asked to perform an action such as choose an object, or make a choice. There is an excellent chance she will understand the question and she will have no way to do what is asked. She cannot control her motions. It is as if you appeared to be in a coma and are fully aware of your surroundings. All you want to do is scream to the doctors standing there, but alas, you have no control of your body. The frustration must be unbearable. I do not want to subject my daughter to this. My daughter is already dealing with being told she will never graduate high school with a diploma as her peers will. She does not receive grades. She knows she will fail this exam. Why, in fact, should she try anyway? Not everyone agrees with NCLB. But the primary goal underlying this law is nevertheless important - for parents, educators, and other stakeholders to help all children learn to the best of their ability. Actually, I agree with the NCLB and think it is important. I am a pedagogue at heart having taught at several universities and won awards at such. BUT, it is not applicable for this population. I await your response. Thank you.
Any bets on if I will get a response?
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